The Transition from High Functioning to Low Functioning Autistic Adults
Understanding the transition from high functioning to low functioning autistic adults is a complex and nuanced issue. This article explores this topic based on personal experiences and real-world observations, helping to debunk common misconceptions surrounding high and low functioning autism.
Understanding High and Low Functioning Autism
Autism is a spectrum disorder, meaning that individuals can exhibit a wide range of challenges and strengths. Traditionally, the phrase 'high functioning' was used to describe autistic individuals who appeared to be more capable, often excelling in areas such as academics or specific skills, whereas 'low functioning' was applied to those with more severe challenges. However, these labels are increasingly seen as harmful and limiting. Instead of focusing on 'high' or 'low' functioning, it might be more accurate to discuss support needs.
What is a low functioning adult? Despite the colloquial use of the term, 'low functioning' often brings about a lack of understanding and stigmatization. Many very successful individuals are autistic, functioning well, but maybe not in the same way society expects. They often have the means to hire others to do tasks they cannot perform, which can lead to misconceptions about their daily functioning. The terms 'high' and 'low' functioning are thus often misused and should be avoided. Instead, the focus should be on the support needs of the individual and the available resources that can help them.
Personal Insights: A Story of Constant Struggle
My story mirrors that of many others diagnosed with autism, showcasing how the transition from 'high' to 'low' functioning is not a one-size-fits-all journey.
As I was once considered 'high functioning,' my life revolved around taking care of others, excelling in technology-driven roles, and achieving recognition in various fields. However, in recent years, my life has dramatically changed due to a combination of chronic health issues, constant burnout, and a newfound understanding of my autistic traits.
Note: English is not my native language, and I have dyslexia, but I hope you can understand my story.
Life Changes and Burnout
My recent experiences reflect a life in constant burnout, triggered by significant life changes, such as a divorce. Now, in my mid-sixties, I am acutely aware of the challenges of balancing various roles simultaneously. I have always been the caretaker and provider, but these responsibilities no longer seem feasible.
My journey to diagnosis was a long and arduous one. I first experienced autistic burnout, a condition where an exhausted individual's symptoms worsen, leading to exhaustion. This was followed by a diagnosis of chronic burnout, which finally enlightened me to the true state of my well-being.
Adaptations and Future Outlook
Adapting to these changes has been immensely challenging. My current living situation involves me working from home, doing minimal activities, and maintaining a high level of personal isolation. This is not a lifestyle choice but rather a necessary step to manage my condition.
Currently, the only way I can hope to escape constant burnout is through complete isolation, a condition some might find challenging, especially emotionally. My hope is to find a routine where my days are almost the same, resembling my dream day, where everything is as I desire it to be, and I can repeat this cycle endlessly.
Looking back, my 'high' function is largely attributed to years of masking and faking, which perhaps taught me valuable survival skills but also drained me. I am now facing the reality that my body and mind cannot continue to operate at the levels they once did, leading to a state dominated by burnout symptoms.
However, I remain hopeful. I believe learning to prioritize my own well-being is crucial, even after mastering the art of masking. I need to embrace my condition as an 'alien' being and rely on the support of those who truly understand and respect my needs.
In conclusion, while it is true that some individuals with high functioning autism may experience a decline in their abilitie, it is not due to their autism alone. Instead, it often stems from years of masking and overextension. Understanding and providing appropriate support is key to navigating these challenges and finding a pathway forward.